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ACT Evaluation Reports

ACT on Alzheimer’s Evaluation Reports: 2013, 2014, 2015

Evaluation of the ACT on Alzheimer’s® initiative was a formative or process evaluation used by the ACT project leads to take stock of progress, capture lessons learned, and adjust  course of action, if needed. The evaluator was a volunteer participant in a Leadership Group and in the Leadership Council of ACT on Alzheimer’s from 2011-2013 and was, therefore, familiar with its components. These reports and materials were produced by Paone & Associates, LLC, under contract with Presbyterian Homes and Services, which acted as the fiscal agent for evaluations of ACT on Alzheimer’s from 2013-2015. Evaluation funding was provided by the GHR Foundation.

2013 Reports

ACT on Alzheimer’s Pilot Community: Willmar, MN, June 2013
This report describes the work of the community team from Willmar (MN). Willmar was one of four pilot communities that commented on a draft of the ACT on Alzheimer’s Dementia Capable Community Toolkit and used it to conduct a community assessment process. The team began their work in 2011 to assess dementia awareness, strengths and gaps within different sectors of their community. The assessment was done in a piecemeal fashion because Toolkit sections were being written concurrently with the team’s testing of the tool.. They turned the challenges they encountered into recommendations for the ACT Toolkit designers, which were then incorporated into the next version of the resource. The evaluator used a semi-structured interview protocol to interview key team members and reviewed team notes and materials.

ACT on Alzheimer’s Pilot Community: Walker, MN, June 2013
Walker (MN) was one of four pilot communities that commented on the draft ACT on Alzheimer’s Dementia Capable Community Toolkit while using it for their community engagement process. Walker ’s experience from 2012 through early 2013 is profiled in this report. The evaluator used a structured interview protocol to interview key team members (Walker Community Coalition) and reviewed all team notes and materials. Challenges and successes are reported.

ACT on Alzheimer’s Pilot Community: St. Louis Park, MN, June 2013
St. Louis Park (MN) was another of the four pilot communities helping to develop and test the ACT on Alzheimer’s Dementia Capable Community Toolkit, while also using it to identify areas for action. The evaluator used a structured interview protocol to interview key team members. The report describes their work, accomplishments, and barriers.

ACT on Alzheimer’s Pilot Community: Twin Cities Jewish Community, June 2013
The Twin Cities Jewish Community is a community of affinity and another of the four pilot communities that helped develop and test the ACT on Alzheimer’s Dementia Capable Community Toolkit. The evaluator used a semi-structured interview protocol to interview key team members and reviewed team meeting materials and other documents. This report describes how members were highly engaged in reaching out to the rabbinical community and used one survey section and a portion of the draft Toolkit. They provided one-on-one education while conducting their community assessments. Challenges and successes are noted in the report.

Pilot Communities’ Use of the Dementia-Capable Communities Toolkit: Composite Report, June 2013
This report synthesizes the results across the four pilot communities that helped develop and test the ACT on Alzheimer’s Dementia-Capable Communities Toolkit. The report identifies common findings and themes, and offers lessons learned and advice/tips for other communities interested in conducting this community engagement process. The report also includes each individual community report.

Use of Dementia-Capable Community Toolkit: Evaluation, July 2013
This slide deck was presented as part of the orientation and early work of the fifth ACT on Alzheimer’s community—the St. Paul Neighborhoods Community Action Team. It offers learning from the initial four pilot communities.

Logic Model for ACT on Alzheimer's Action Communities, Revised December 2013
This document lays out a framework and the evaluator’s assumptions underlying the formative/process evaluation for measuring progress of the ACTion communities.

Logic Model for Dementia Capable Communities, ACT on Alzheimer’s 2013-2015, December 2013
One graphic (a PowerPoint slide) that gives a simple depiction of a logic model for ACT of Alzheimer’s communities working with the Dementia Capable Communities Toolkit. The model lays out assumptions about issues and factors around context, implementation (activities and outputs), and short and longer term outcomes expected as the communities work through the community engagement process.

2014 Reports

Logic Model for ACT on Alzheimer's Practice Tools and CurriculaJanuary 2014
One graphic (a PowerPoint slide)  that provides a simple depiction of a logic model for adopting ACT on Alzheimer’s® practice tools and resources. Includes assumptions about factors and components around (1) context, (2) implementation (with activities and outputs), and (3) outcomes (with short-term effects and longer-term impact).

Dementia Capable Communities – Learnings to Date, January 2014
This slide deck was part of a webinar presentation to the Minnesota Area Agencies on Aging to orient them on the ACT on Alzheimer’s Dementia-Capable Community Toolkit. Lessons learned from the initial four pilot communities were shared.

St. Paul Neighborhood Consortium ACT on Alzheimer’s Dementia-Capable Community ACTion Team (SPN-ACT): Report on 2013 Progress, February 2014
Six St. Paul neighborhoods formed the fifth community (St. Paul Neighborhoods Action Community Team) using the ACT on Alzheimer’s Dementia Capable Communities Toolkit. This report describes the phases conducted in 2013, including convening, conducting surveys in a community engagement process, reviewing results, and identifying priority areas. Two action priorities included (1) raise awareness about community organization and resources available to people with dementia through creating a St. Paul-specific, culturally appropriate resource package, and (2) improve community members’ skills/knowledge about the warning signs and how to interact with people with dementia by hosting Dementia Friends training sessions throughout the community.

SPN ACT Progress Update & Evaluation Next Steps, February 2014
This slide deck was presented to the St. Paul Neighborhoods Action Community Team (SPN ACT) and the community at large to provide a progress report. The deck also describes a self-assessment survey for electronic distribution to team members. The purpose of the survey was to take stock of the functioning of the team itself and  help the coordinator make mid-course corrections as needed.

Survey of Participants as “Early Adopters”, May 2014 Full Report, Executive Summary
This report provides findings from a survey of individuals involved in ACT on Alzheimer’s working and leadership groups to learn how the ACT on Alzheimer’s initiative had impacted them and whether they had adopted or used its products, tools and resources. Respondents included Leadership Groups, Leadership Council/Executive Committee, Management Steering Committee, and other sub-committees or working groups. It was assumed that these participants represented “early adopters” of the ACT-developed tools and resources.  . The report provides a picture of engaged individuals who provided significant time, content expertise, and energy toward developing the resources generated by the initiative, as well as bringing others into the work and making the work known.

Self-Assessment Survey Results by Saint Paul Neighborhoods ACTion Team (SPN ACT) March-May 2014, July 2014
This report provides the results from the self-assessment survey conducted of SPN ACT team members. Survey content was based on research literature about how effective coalitions function and what factors drive success. Thirty-two active SPN ACT members responded. Results showed strong positive feedback on members’ understanding of the purpose of the work, support for how the effort had been organized, their opportunity for involvement, and the communication.

ACT on Alzheimer’s Dementia Capable Community: Report on Progress, Cambridge, MN, July 2014
This report provides information on the Cambridge (MN) action team, which began its work in May, 2013 using the ACT on Alzheimer’s Dementia Capable Communities Toolkit and community engagement process. Two coordinators worked with a team of more than 23 individuals. The team completed the first three phases of work by mid-2013, and members were ready to focus their attention on priorities for action. These priorities included 1) providing information to health care providers to enhance their ability to offer information and follow-up resources immediately after diagnosis and 2) working with first responders.

2015 Reports

Overview & Update on ACT on Alzheimer’s Formative Evaluation, January 2015
This document provides an abbreviated (3-page) update and synthesis of evaluation findings through late 2014.

SPN ACT Dementia Training Evaluation and Trainers’ Survey (2014), January 2015
This slide deck describes results from the Dementia Friends training session evaluations (N=42) and the Dementia Champions training sessions (N=27) through late 2014. All training sessions were conducted as part of the SPN ACT community action team work. Responses describe motivations of individuals who signed up for training, as well as their suggested changes to the content or format of the training, challenges and successes they’ve had, lessons learned, and what impact  they have observed from the training.

ACT on Alzheimer’s Leadership Group Chairs: Perspectives, March 2015
As part of the ACT on Alzheimer’s formative evaluation, key informant interviews were conducted between late October and December of 2014 with the ACT on Alzheimer’s Leadership Group Chairs. Each Leadership Group (six total) had a defined purpose and focus with volunteers (group members) from various service sectors, government agencies, educational institutions, industry leaders, and community leaders, as well as individual caregivers or residents. Leadership Group Chairs had been involved in the ACT initiative for at least three years. The interviews were to capture insights on the work and the results, as well as lessons learned about implementation and what yet needed to be done.  Key themes emerged, including strength of the collective action structure and process, engagement of 33 action communities as the strongest and most tangible output to date, prolific development of tools and resources, and the need to continue the work.

St. Paul Neighborhoods Action Community Team (SPN ACT): Report on Progress – Snapshot #2March 2015
This evaluation/progress report continues the implementation evaluation, tracing the work of the St. Paul Neighborhoods (SPN ACT) team  in 2014 and early 2015. The SPN ACT work provided real-world experience to help shape the Dementia Champion and Dementia Friends training and fostered dissemination throughout Minnesota. Lessons learned from collective action and the recommendations of leaders were captured and shared in this report.

SPN ACT: Evaluation Results, March 2015
This slide deck presents the results from the implementation/process evaluation focused on the St. Paul Neighborhoods team (SPN ACT), particularly the work done in 2014.

ACT on Alzheimer’s Evaluation: Caregiver Focus Group Report, May 2015
Four caregivers of persons with Alzheimer’s disease who had also been active in one of four different ACTion communities participated in a focus group. The evaluation purpose was to obtain insights and the perspective from informed and involved caregivers about the results, impact, differences, and desired impact arising from the ACT on Alzheimer’s dementia-friendly community engagement efforts. The report provides common themes, direct quotes, and recommendations for measuring impact.

ACT on Alzheimer’s Community - Dr. Solomon Carter Fuller (North Minneapolis): Activities & Progress as of May 2015, June 2015
This report gives background and describes the activities and progress made by the Dr. Solomon Carter Fuller ACT on Alzheimer’s community located in North Minneapolis. The evaluator used a semi-structured interview protocol to interview key team members and reviewed team meeting materials and other documents. Through two open-invitation meetings and more than a dozen small-group team meetings, this community’s community assessment and engagement process included a Call to Action and pledges. The two coordinators worked through a culturally responsive process to encourage individuals and organizations to take steps toward building community awareness and to increase the availability of local resources that address Alzheimer’s disease in the African-American community.

ACT on Alzheimer’s Community- Latino Collaborative: Report on Activities & Progress,  June 2015
This report describes the ACTion community engagement work of this affinity community located in Minneapolis, with a focus on Latino residents. The evaluator used a semi-structured interview protocol to interview key team members and reviewed team meeting materials and other documents. Through using professional and personal networks within the community, several key individuals were successful in engaging additional interest and involvement. The strategies, challenges, and successes that characterize their experience are described.

Minnesota Council of Churches ACTion Community Progress ReportSeptember 2015 Using a semi-structured interview protocol, the Coordinator and several individuals representing various faith communities were interviewed. The report describes involvement of three churches that are members of MCC. These three faith communities utilized highly engaged congregational member volunteers to conduct interviews of pastors and others within their congregation to find out their level of awareness of AD and probe on priorities for action. The volunteers also engaged in training and learned about what dementia capability means. Each faith community is determining its own next steps.

ACT on Alzheimer's Final Evaluation Report (2013-2015) - Executive Summary, October 2015

ACT on Alzheimer’s Final Evaluation Report (2013-2015), October 2015 ; Final report on the activities and findings, focused on four key areas: health care tools, community engagement, caregiver resources, and policy influence. 

Adoption/Implementation of ACT Tools: Case Example: Health Partners, MN, October 2015 This provides a case example of one large health organization and key implementation strategies, successes and challenges in adopting and embedding the ACT health care provider practice tools.

ACT Evaluation Index and Instrument Repository, October 2015 Contains the key informant interview question sets, self-assessment tool, electronic survey tools, and other data collection and analysis instruments as well as background documents used during the two+ years of this evaluation work.